A children s guide to bone marrow donation Children s Cancer

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A children s guide to bone marrow donation Children s Cancer

Transcript Of A children s guide to bone marrow donation Children s Cancer

Jess’

ation

Bone Marrow Don s
A children’s guide to bone marrow donation
Children’s Cancer and Leukaemia Group - www.cclg.org.uk

Originally written by Jenny Astall and edited by Lesley Edwards and Penny Owens on behalf of the CCLG Publications Committee, comprising multiprofessional experts in the field of children’s cancer.
Illustrated by Simon Pritchard
First designed and published March 2009 Revised and reprinted May 2014 Review date May 2017 © CCLG 2014
Publication of this booklet was funded by CCLG

Children’s Cancer and Leukaemia Group 3rd Floor, Bosworth House 9 Princess Road West Leicester LE1 6TH
Tel: 0116 249 4460 Fax: 0116 249 4470
Email: [email protected] Website: www.cclg.org.uk
Registered Charity No: 286669

www.facebook.com/ChildrensCLG

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@CCLG_UK

About you
This booklet is yours to help explain about being a bone marrow donor and some of the things that may happen to you.

my name:

my age:

my hospital:

date of donation:

I am donating my bone marrow to: 3

What is the bone marrow?
Bone marrow is the soft bit in the middle of your bones and is the factory where all of your blood is made. Your blood is made up of different parts.
Platelets stop you from bleeding when you get a cut or fall over and hurt yourself

White blood cells help your body to fight infections

Red blood cells give you energy to help you run around and play
Your brother, sister or other relative’s bone marrow isn’t working properly. That is why they need a bone marrow transplant.

We need to give them new bone marrow that is working well

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to help make them better.

We would like you to meet Jess.
Jess is going to tell you about what it is like to be a bone marrow donor. Jess is helping her brother Ben get better by being a donor.
To be a bone marrow donor means that your bone marrow is healthy and working well and a blood test shows your marrow matches your relative’s
bone marrow.

Meet Jess
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Before you give some of your bone marrow
Firstly, Jess wants to tell you what will happen before you donate your bone marrow.
You will have a little bit more blood taken for blood tests.
You will meet a doctor and a nurse who will explain all about being a bone marrow donor, and make sure you are fit and well.
You may also need to have something called an ECG which does not hurt – this tells us about your heart. Your nurse will tell you all about an ECG and how quickly it is done.
You will meet with hospital staff to make sure that you understand what will happen when you come into hospital to be a bone marrow donor and that you are happy with being a bone marrow donor. This is called an HTA assessment.
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What is an HTA assessment? HTA stands for the Human Tissue Authority. It is our job to make sure that you and your parents know what is involved for you when donating bone marrow, and both you and your parents agree to you donating.
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Hospital staff
You will meet lots of new people during your bone marrow donation process.
Here is a list of the types of people you may meet. You may like to write down their names to help you remember them or you may like to draw a picture of them. Transplant Doctors Transplant Nurses Play Specialist Psychologist HTA Assessor (who may also be one of the above people) Anaesthetist
Have you met any other people? 8

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Coming into hospital

Everybody feels differently about coming into hospital. Do you feel excited, nervous, happy, frightened, sad, angry, scared or worried? You may find that it helps to talk about these feelings.

When Jess came into hospital to donate her bone marrow to Ben, he was already in hospital having his treatment. Ben also had some special x-rays called radiotherapy. He was in his isolation room to help stop him getting germs so Jess was only allowed to wave at him through the window and talk to him
on the telephone or by using their walkie talkies.

You will only need to stay in hospital for a
short time.

You usually have to stay for a night or two on the wards.

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Bone MarrowJessBone Marrow DonorHospitalPeople